Unbelievable! Meet a girl whose heart beats outside her bodyBorun suffers from Pentalogy of Cantrell. It is a rare congenital disease which causes the heart and intestine to grow outside the body.
The world is full of bizarre medical anomalies. We’ve seen a number of cases where people have their heart situated on the right side of their chest. But in this case, the utter abnormal placing of girl’s heart is making the headlines around the world. 8-year-old Virsaviya is born like any other girls of her age. She loves to play and is as jolly as her peers are. The only difference this girl has is that Borun suffers from Pentalogy of Cantrell. It is a rare congenital disease which causes the heart and intestine to grow outside the body.
This condition affects about 5.5 infants in 1 million live births, making it an utter-rare phenomenon. It can cause severe life-threatening complications. In a video uploaded on YouTube, the girl’s heart can be seen beating outside the body. She giggles and playfully show it off to the camera.
“This is my heart. I’m the only one that has this,” she told BBC in a documentary shot on her in February.
“When I’m getting dressed, I put soft clothes on to not hurt my heart. And I just walk around, I jump, I fly, I run... Well, I am not supposed to run but I love running,” she said.
Doctors warned her mother that the girl wouldn’t survive. But eight years later, she is as playful as she was. According to her Facebook page, she enjoys singing, art and making clay structures.
Borun was born in Russia and later moved to Florida with her mother after many hospitals around the world refused to operate on her citing the complications involved in surgery. Surgeons in Boston have also declined to perform the surgery because of high blood pressure in her pulmonary artery.
Her mother still hopes that someday doctors will find the solution to her daughter’s problem.